Omphalocele Awareness Day

There is no other organization that I’m aware of that wear a ribbon made of a cow print. Odd. But, there’s actually a reason that we use the cow pattern to represent our international group of parents and survivors of Omphalocele referred to as Mothers of Omphalocele. We affectionately refer to ourselves as “Moos,” thus the cow theme!

Our group is comprised of 600+ members from countries all around the world. Mothers of Omphalocele provides a forum for all parents of “O Babies” to allow us a chance to celebrate, mourn, comfort, debate, question, and support each other through what is likely to be the most challenging times in all of our lives.

There is no cost to be a member of this group. The resources and ideas that are generated in this group are invaluable. Members are known to share supplies, research, advancements in technology and medical protocols, and personal experience in this private forum.

We Moos will observe Omphalocele Awareness on January 31, 2013. We are asking all of our friends, families, associates, medical team, and children to wear white and black in honor of our courageous children and in memory of our “O-Angels” and their families.

Thank you for your continued support of our special “O” baby warriors.

Please join us in showing your support of these little “O” Warriors by wearing your white and black on Omphalocele Awareness Day.

  • Grace

    Hello my Name is Grace i was born with an omphalocele and i was wondering if there is something i can do

    • Jessica

      Hello Grace, I was also born with an omphalocele and would love to help answer any questions or offer support. I am now 30 years old and live a very normal and wonderful life. I would love to connect with you if you still have questions. Please let me know how I can help. Psalm 139:14-16

      • Grace

        This is Grace again and i would like to ask u a question can girls that had large omphalceles have kids i ask doctor after doctor and even though i am young i want to know so i am not disappointed in the future

        • Terisa Bianchi

          Hi Grace. I’m almost 29 years old and was born with a large omphalocele. I am happy to report that I am also a mother to 2 little boys! I went through a high risk OBGYN and delivered both boys at a large hospital in Boston instead of a smaller, more local one. I had no complications during delivery but my team was very well versed on my abdominal anatomy should they have needed to perform a c – section or emergency surgery. There is hope for you as many O adults I have had the opportunity of speaking with, have had children ☺

    • Lisa Santana

      A lot of us have had babies, Grace. I’ve had 3. If you are on Facebook, you can join our Adult Omphalocele group, Jessica, you too, if you’re not already in it.